Beyond Clinical Outcomes

Bristol-Myers Squibb

UK patient experience in head and neck cancers

one hand clasping another in comfort

The report is based on a survey carried out across the United Kingdom in June 2019 among 118 patients to better understand the patient experience after being diagnosed with head and neck cancer and the care that they received beyond treatment itself. The survey was conducted in accordance with the Market Research Society (MRS) Guidelines, the British Healthcare Business Intelligence Association (BHBIA) Legal & Ethical Guidelines, the Association of the British Pharmaceutical Industry (ABPI) Code of Practice and all UK Data Protection legislation.

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This report was written and funded by Bristol-Myers Squibb (BMS).

The concept of the survey was developed and funded by Bristol-Myers Squibb following a comprehensive review of survey types and questions by an independent market research agency. The survey itself was co-developed via a 3-way partnership between BMS, The Swallows Head and Neck Cancer Patient Support Group and the Mouth Cancer Foundation (two charities who provide support and advice to Head and Neck cancer patients). The patient charities played a pivotal role in both shaping the survey questions and in the dissemination of the survey to patients through their social media channels (Twitter and Facebook), while BMS commissioned an independent market research agency, specialising in surveys, to host the survey and provide results as aggregated data tables.

The survey collected data over the period 1-20 June 2019.

The Swallows is a nationwide head and neck cancer support charity formed by patients who experienced a lot of difficulty swallowing after their cancer care treatment. It is a support group that organises monthly meetings in Blackpool and provides practical information for both patients and their carers. It also has a 24/7 support line service.

The Mouth Cancer Foundation is a charity that is dedicated to the relief of sickness and the promotion and protection of good health among those suffering or at risk of mouth, throat and other head and neck cancers. Founded in 2004, it is a professional support organisation dedicated to supporting people with mouth, throat and other head and neck cancers.


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